Neurofibromatosis (NF1 and NF2)

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Doctors Who Treat Neurofibromatosis

An individual with neurofibromatosis is best treated by an interdisciplinary team that may include the following:

  • neurosurgeon
  • oncologist
  • neurologist
  • orthopedic surgeon
  • ophthalmologist
  • physical, occupational, and/or speech therapist
  • hearing specialist
  • geneticist

If surgery is needed, to remove tumors that may be cancerous or for cosmetic reasons, the Neurofibromatosis Surgery Program at the Weill Cornell Pediatric Brain and Spine Center offers the services of two of the top pediatric neurosurgeons in the country:

Dr. Mark SouweidaneMark Souweidane, M.D., vice chairman of the Weill Cornell Department of Neurological Surgery and director of the Weill Cornell Pediatric Brain and Spine Center, is internationally recognized as an expert in the field of pediatric neurosurgery, including neurofibromatosis and other pediatric tumors. He has been named one of America’s Top Doctors by Castle Connolly, and is regularly included on lists of the nation’s Best Doctors and Super Doctors. A pioneering champion of minimal access neurosurgery, Dr. Souweidane has specialized endoscopic surgical skills that attract patients and practitioners that benefit from his talents. (Read more about Dr. Souweidane.)

Jeffrey Greenfield, PhD, MDJeffrey Greenfield, M.D., Ph.D. is Assistant Professor of Neurological Surgery in Pediatrics at Weill Cornell Medical College and a pediatric neurosurgeon at NewYork-Presbyterian Hospital/Weill Cornell Medical Center. Dr. Greenfield, whose laboratory research includes the Children’s Brain Tumor Project, specializes in minimally invasive (endoscopic) pediatric neurosurgery as well as in advanced surgery for tumors that affect children and adolescents. (Read more about Dr. Greenfield.)

Dr. Rohan RamakrishnaRohan Ramakrishna, M.D. is an award-winning neurosurgeon who specializes in the treatment of brain tumors and other central nervous system tumors. Dr. Ramakrishna treats patients with gliomas, metastatic disease, skull base lesions, and pituitary disorders. He employs advanced awake mapping, imaging techniques, and microsurgery to ensure maximal tumor removal and achieve the safest possible surgical outcomes. (Read more about Dr. Ramakrishna.)

Dr Philip E. Stieg, Weill Cornell MedicinePhilip E. Stieg, Ph.D., M.D., the chairman and neurosurgeon-in-chief of the Weill Cornell Brain and Spine Center, leads the cerebrovascular team. Dr. Stieg is one of the top neurosurgeons in the nation, having been named one of America’s Top Doctors by Castle Connolly each year since that designation was created nearly two decades ago. Dr. Stieg has developed an international reputation in the area of cerebrovascular disorders and surgery; his work has been broadly published, and he has contributed to groups such as the Joint Sections of Cerebrovascular Surgery of the American Association of Neurological Surgeons and Congress of Neurological Surgeons (AANS/CNS). He is the past President of the Society of University Neurosurgeons and has received multiple awards and honors for his work. (Read more about Dr. Stieg.)

Neurofibromatosis is a complicated disorder, and it should be treated at a major medical center by specialists with expertise in the condition. Our Comprehensive Neurofibromatosis Clinic ensures that each patient gets the individualized treatment plan that will create the best outcomes.

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