Patient Stories

Ashleigh and Patrick Kennedy spent four years trying to find out why their little girl was so sick. She was already being treated for a blood disorder, but doctors said her headaches were not related to that. Her eventual diagnosis and treatment for...
Danielle Dietz had a lot of headaches as a high school student, but it wasn't until she learned to trust herself that she found the solution she needed
By Brenda Ries. Shortly after Sean's fifth birthday, we received unthinkable news.
By Cindy Campbell Ty Louis Campbell was a beautiful baby, then a rambunctious toddler with curly blonde hair and an infectious smile. At two years and ten months old, Ty was the picture of health — no developmental delays, no medical issues — but he...
Patti Ventura was shocked by her son's diagnosis, but she transformed her initial shock into determination to secure the best outcome for him. Since that time she's also raised thousands of dollars to help support Chiari research. Here is her story....
In May 2012, gliomatosis cerebri claimed the life of 21-year-old college sophomore Elizabeth Minter. Gliomatosis cerebri is a rare and inoperable brain tumor that strikes children and young adults, and the prognosis is usually very poor. Here are...
Connor was a 15-year-old high school student when he was diagnosed with a severe Chiari Malformation. Here is his story.

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